If you or your institution are potentially interested in implementing any of the following measures in your clinic or to use it for research, please contact Laura Simons at  The measures are free for use and only require permission from the author.


Fear of Pain Questionnaire, Child and Parent Report

Questionnaire to assess pain-related fears among children and adolescents living with chronic pain. Long form and short form (SF) available

Parent Fear of Pain Questionnaire

Questionnaire to assess parent pain-related fears of children and adolescents living with chronic pain.

Parent Pain Acceptance Questionnaire

Questionnaire to assess parent acceptance of their child’s pain.

Chronic Pain Acceptance Questionnaire for Parents

Questionnaire to assess parent perceptions of their child’s pain acceptance.

Photographs of Daily Activities

English adaptation of the PHODA-Youth in collaboration with Jeanine Verbunt, MD and Marielle Goosens, PhD at Maastricht University, Netherlands, who created a Dutch version of the measure. Please contact Laura Simons at

Pediatric Pain Screening Tool

Pediatric adaptation of The Keele STarT Back Screening Tool in collaboration with Jonathan Hill, PhD at Keele University. The PPST is designed to identify a patient’s risk status (high, medium, or low) of poor pain-related outcome using established psychosocial prognostic factors.

Parent Risk and Impact Screening Measure (PRISM)

In collaboration with Anna Wilson, PhD and Amy Holley, PhD at Oregon Health Sciences University, the PRISM is a brief self-report screening tool of parent psychosocial functioning and behavioral responses to child pain. The PRISM is designed to identify a parent’s risk status (high, low) of poor outcomes related to their child’s pain using established psychosocial prognostic factors.

Pain Vigilance and Awareness Questionnaire, Child Report

Questionnaire to assess attention to pain in children.


Pediatric Camp Outcome Measure

Questionnaire to assess the impact of the therapeutic camp experience among children and adolescents living with a chronic illness.

Parent and Adolescent Medication Barriers Scales

Questionnaires to assess barriers to medication taking from the parent and adolescent perspective. Initially developed for use with pediatric transplant recipients but has been disseminated across several populations of children living with chronic medical conditions.

PMBS Handout

          English          Dutch         French         German

Italian         Polish         Spanish (Spain)         Spanish (USA)

AMBS Handout

English          Dutch         French         German

Italian         Polish         Spanish (Spain)         Spanish (USA)

Multidimensional Adherence Classification System

Medication adherence classification system that incorporate self-report and drug assay levels to incorporate subjective and objective measures of adherence data to better classify adherence among pediatric transplant recipients. Please contact for more information about this assessment

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