Journey in Pain Care
About the Study
We want to hear your story. We’re striving to understand more about parent and youth journeys as they navigate pain care. To do so, we are interviewing youth and parents individually about their personal experiences. Through listening to youth and caregivers, we hope to identify unmet needs and gaps in pain care to improve chronic pain treatment into the future. This study is open to SPRINT. Your participation in the SPRINT study is separate and will not be impacted by your decision to participate or not participate in the Journey in Pain Care Study.
About the Interview
You and your caregiver will be asked to reflect on your pain care journey in a 60-minute interview guided by one of our study team members. We will conduct separate interviews with you and your caregiver. Interviews will take place online via zoom or in-person, depending on your preference. You will receive a $50 Amazon gift card as a thank you for your time.
What Youth are Saying
"I would totally recommend [this study] because honestly I did it because I want to make differences in other people's lives. Just like maybe one day there's going to be a cure for chronic pain and we can be a part of that. I think that'd be pretty cool."
“I think it's good to reflect on everything that's going on, and sometimes it can be helpful to just look back at the bigger picture of even a smaller thing
"I think it’s a good time to sit down and reflect on what you've done, and you know the accomplishments that you've come across throughout your whole journey and yeah it's somewhat comforting in a way."
"Creating a timeline kind of helps in realizing how far you've come or what your next steps can be. Also it might help another person, so that's really awesome if it does."
What Caregivers are Saying
“Whatever we can do to help other families… She [teen] likes it so we do it for her. She gets excited. She believes she's doing something good so that's why we do this. However our testimonies, our experiences, can help someone else, can help your work, so that good things can happen and you can offer other people services, why not help?”
"I think it was actually helpful for me to put some of my thoughts and feelings into perspective and kind of explore those a little. I honestly think it was very beneficial for me."
"It is a chance to talk to someone about this process. Hopefully as people discuss their stories you can glean some kind of correlations or patterns that would help make this program even better."